RARE DISEASES

A Conversation on Value Assessments

Friday, December 10

10:00AM ET/7:00AM PT

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7:00 PM

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Explore why the most dynamic leaders are building strategies for agile event marketing with a focus on scaling in-person and virtual events that are fast, flexible, and hyper-effective at driving meaningful connections.

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12:00-1:00 PM

Main Event

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Lucy Hernandez

Chief Creative Officer

Openform

Lucy Hernandez is senior director of product marketing at Openform, where her goal is to help people unlock the power of in-person events. Prior to Openform, she led global product marketing teams.

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Friday, December 10

10:00AM ET/ 7:00AM PT

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Rare Diseases: A Conversation on Value Assessments

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What was covered

Great power competitors such as China and Russia have increased their military capabilities over the past 20 years, impacting how the U.S. military procures, builds, and deploys critical readiness components.  


In 2018, the U.S. National Defense Strategy, aiming to restore its competitive edge, required streamlined contracting and purchasing processes backed by a secure supply chain.


As technology advances rapidly, how are 21st-century Navy and Marine Corps teams preparing for future threats and crisis response operations? How is the Pentagon procuring, designing and deploying amphibious warships, aircraft, weapons and sensors? How has the pandemic affected the defense industrial base supply chain, and what are defense communities doing to prevent future disruptions?


On March 18, The Hill will convene members of Congress, defense and national security leaders, and more to explore how the Navy and Marine Corps can maintain military readiness domestically and abroad.


Key Topics:

What agile event programs are and why they're essential

Strategies and tools for building agile event marketing

How to scale agile event programs without losing brand integrity or valuable data

Steps you can take right now to introduce agile event marketing into your business

Grab your favorite snack and tune in.

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About

Great power competitors such as China and Russia have increased their military capabilities over the past 20 years, impacting how the U.S. military procures, builds, and deploys critical readiness components.  


In 2018, the U.S. National Defense Strategy, aiming to restore its competitive edge, required streamlined contracting and purchasing processes backed by a secure supply chain.


As technology advances rapidly, how are 21st-century Navy and Marine Corps teams preparing for future threats and crisis response operations? How is the Pentagon procuring, designing and deploying amphibious warships, aircraft, weapons and sensors? How has the pandemic affected the defense industrial base supply chain, and what are defense communities doing to prevent future disruptions?


On March 18, The Hill will convene members of Congress, defense and national security leaders, and more to explore how the Navy and Marine Corps can maintain military readiness domestically and abroad.


About


One in 10 Americans suffers from a rare disease—that’s 30 million Americans who need access to treatment. According o the NIH, a rare disease is one that affects fewer than 200,000 people in the United States at any given time. Since the passage of the Orphan Drug Act in 1983, progress has been made in researching and developing drugs for the 7,000 rare diseases currently identified by scientists, but many diseases still lack adequate therapies, preventing patients from accessing new innovations. 


What are some of the unique roadblocks drug manufacturers face when developing orphan drugs? How can we encourage new breakthrough treatments at prices patients can afford? What can policymakers do to increase innovation and access to orphan drugs for all patients?


The Hill will bring together researchers, advocates, and more for a comprehensive discussion on orphan drugs.



Agenda

(all times Eastern; subject to change)

 


1:00 PM - Interview with Rep. Madeleine Dean (D-PA); Member, Financial Services Committee

 

 

1:10 PM - Interview with Rep. Dan Meuser (R-PA), Member, Committee on Small Business

 

 

1:20 PM - Sponsor Perspective Presented by Wells Fargo

 

 

1:30 PM - Expert Panel with Andrea Custis, President & CEO, Urban League of Philadelphia, Jim Burnett, CEO, VestedIn and Sunny Phanthavong, Chef & Owner, Vientiane Bistro

 

Featuring:

Dr. Ge Bai

Professor

Healthcare Policy & Management, Johns Hopkins Bloomberg School of Public Health

Tammy Boyd, JD MPH

Chief Policy Officer & Senior Counsel

Black Women’s Health Imperative

Rep. Larry Bucshon (R-IN)

Member

Committee on Energy and Commerce, Subcommittee on Health

Rep. Anna Eshoo (D-CA),

Chair

Health Subcommittee

Annie Kennedy

Chief of Policy, Advocacy, & Patient Engagement

EveryLife Foundation for Rare Diseases

Kelly Maynard

President & Founder

Little Hercules Foundation

Dr. Brett McQueen

Director

Center for Pharmaceutical Value, University of Colorado

Debra Regier, MD

Medical Director

Rare Disease Institute, Children’s National Hospital

Additional speakers to be announced.

Sponsor Perspective:

Dr. Jason Shafrin

Founder, Editor, and Chief Writer, Healthcare Economist, Sr. Managing Director,

Center for Healthcare Economics & Policy, FTI Consulting

Moderator:

Steve Clemons

Editor-at-Large

The Hill

Bob Cusack

Editor-in-Chief

The Hill

Julia Manchester

Reporter

The Hill

Your Hosts

Lucy Hernandez

Chief Creative Officer

Openform

Lucy Hernandez is senior director of product marketing at Openform, where her goal is to help people unlock the power of in-person events.

Leo Di Salvo

Sr. Technology Consultant

Openform

Leo Di Salvo is the Senior Technology Consultant at Openform, where his goal is to help people unlock the power of in-person events.

Run of show

12:00PM

Webinar Begins

Opening remarks from your hosts

12:15PM

5-Tips

5 Tips for Creating Virtual Events

12:45PM

Closing

Final remarks from your hosts

Grab your favorite snack and tune in.

Pro Tip:

First, watch the video to learn how to use this type of theme. Then, replace the iFrame embed code of the video below by clicking into it and clicking on the "Embed Options" tab on the right. Hide this element when you're finished.

 
Need more help? Here are some great Help Center articles regarding embed best-practices:

 
How do I resize an iFrame?


What's the difference between iFrame elements and Video elements?


How do I embed webinars or livestreams using an iFrame element?


What can I embed using an iframe into Splash?

Resource List

01

A Guide to Agile Event Programs that Can Survive Anything

Explore why the most dynamic leaders are building strategies for agile event marketing with a focus on scaling in-person and virtual events that are fast, flexible, and hyper-effective at driving meaningful connections.

Download
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02

Crisis Mode: Ideas for Managing Events in Challenging Situations

Learn strategies, experiences and lessons learned from top event marketing leaders who have walked through the fire more than once and lived to talk about it.

Register
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03

How to Build a Rock Solid Agile Events Program

The old way of doing event marketing—a large, inflexible investment in a small number of tentpole events—doesn't fit into a business world that demands adaptability and speed.

Watch now
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SPONSORED BY: 


Join the conversation! Tweet us using @TheHillEvents and #TheHillRareDiseases

RSVP
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Lucy Hernandez

Chief Creative Officer

Openform

Lucy Hernandez is senior director of product marketing at Openform, where her goal is to help people unlock the power of in-person events. Prior to Openform, she led global product marketing teams.

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